untitled
My Battle with Breast Cancer
: How I Won

 
 
Chemo - 1st 4 Rounds

With the Mediport installed we were ready to begin my treatment which consisted of 8 rounds of chemotherapy once every 3 weeks and 6 ½ weeks of radiation everyday Monday thru Friday.

 

We started with 4 rounds of Adrimycin.  First a little bit about the drug:

Adriamycin (generic name, doxorubicin) is a chemotherapy drug commonly used to treat breast cancer and other cancers.  Adriamycin first disrupts, then destroys the growth of cancer cells.   It is usually administered intravenously (through the vein).  Common side effects may include decreased white blood cell count with increased risk of infection, decreased platelet count with increased risk of bleeding, loss of appetite, darkening of nail beds and skin creases of hands, hair loss, nausea and vomiting, and mouth sores.  All of which are so much fun.

 

When I’d go in the first thing they’d do is take some blood and make sure everything was in order, if your white cell count is too low you can’t receive the chemo.  Then the nurse would tap the Mediport by sticking a needle through the skin over the device and then into the receiving whole in the port.  Fortunately my oncologist and the chemo lab were at the same hospital and all I had to do was go down stairs to have the chemo administered.  Adriamycin can’t be put on automatic drip like other chemo drugs it has to be pushed by hand and if any gets on your skin it burns.  It makes you very tired and nauseous (which they give me drugs for so the nausea wasn’t too bad most of the time). The Adrimycin is what made me lose my hair.  They say that this treatment may or may not make your hair fall out, whatever, just count on it.  My oncologist said if it’s going to happen it would happen in about three weeks.  Two weeks in I called my Papa so excited that I still had my hair and then 21 days after my 1st treatment it started to fall out, by day three I just couldn’t stand watching my hair fall out in clumps any more and shaved my head.  I had a friend bring over his clippers (I wouldn’t even let him in), it took me about an hour to work up the courage to do it and once it was done I didn’t leave my house for two days.  When I finally did I went somewhere familiar, someplace I knew friends of mine would be.  They were all so encouraging, telling me what a cute head I had and how beautiful I was and as nice as it was it didn’t make me feel any better about being bald.  I gradually became more comfortable with my baldness but I never quite got used to it.  Besides the hair loss the hardest things to deal with were the mouth sores and the darkening of my fingers.  The mouth sores are like canker sores and fortunately there are drugs you can take to combat that, but you have to get them before you can be treated and they hurt.  Don’t be too embarrassed when you go to the pharmacy to get the prescriptions filled (they’re herpes meds), they make you feel better and the pharmacist knows you don’t have herpes.  The darkening of my fingers wasn’t painful of physically uncomfortable but people notice so it was a little embarrassing.  I was tired a lot which is hard to deal with, you want to be able to do everything just like always but you can’t.  It’s a tough pill to swallow.  I only had one set back, my 2nd treatment my white cell count was too low to receive the treatment.  I couldn’t figure out what I did wrong, I ate the right things and took my vitamins.  I think I was so worried about my disease and not worried enough about myself and when I stopped living for the cancer things went a lot smoother. 

 

So I made it through my first four treatments with flying colors and it really wasn’t too bad, there were meds to combat all the major side effects and I had some wonderful people take care of me when it just got to be too much.  My friend Trish would bring me to her house for days at a time and cook for me and make sure I had the things I needed and friends who would come with me to my appointments, I even had a group of people get me a cleaning lady for the duration of my treatment so I wouldn’t have to worry about cleaning my apartment too (thanks Brian).  But there were still 4 more to go…

 
Chemo - The Next 4

Four treatments down, four more to go…The next four were mainly Taxotere.  Which I found a little harder to deal with than the Adriamycin, but it still wasn’t too bad.

 

Here’s what they have to say about Taxotere:

Taxotere inhibits the division of breast cancer cells by acting on the cell’s internal skeleton. The drug is usually given intravenously (through the vein) once every three weeks. Each treatment typically takes around one hour, though the dosage will vary depending on the patient’s medical situation. Because the side effects of docetaxel can be bothersome, many physicians will prescribe additional drugs to help counter these effects. For example, dexamethasone is commonly used to prevent fluid retention while on Taxotere. Possible side effects of Taxotere include decrease in white blood cells (leukopenia), fever (often a warning sign of infection), fluid retention, allergic reactions, hair loss, and bone pain (yeah, not so much fun).

The procedure was the same; I’d have my port tapped and go down to the chemo lab.  I didn’t go into too much detail about that before, did I?  At the lab each of us sat in like a cubicle with a recliner (not a Lazy Boy, some sort of medical version) and a little TV, magazines and books.  Why all the entertainment you ask, it takes a while to get your treatment.  First they administer anti-nausea meds, then some saline and whatever else they’re pushing through your veins, and then the chemo.  Each of these things takes a little over an hour to make it’s way through the IV so you’re there for a minute, which is why I liked having friends come with me, we’d play cards and laugh and it elevated the mood in the room, not just for me but for everyone.  Before giving me the Taxotere a steroid was administered to try and prevent the bone pain, which didn’t work so well for me and I was prescribed pain killers (yay Vicodin!) as well.  Unfortunately the only way to find out if the steroid is going to work or not is to let it not work.  The pain settles in your largest bones first so legs and hips, but the pain and is pretty intense.  When I discovered this my friend Jeffrey came to my rescue, thank G-d.  This pain was the only reason the Taxotere was more difficult for me.  Keep in mind that the effects of chemotherapy are cumulative, your first treatments are a piece of cake, but by the end you’re really feeling the side effects. I felt okay, tired but okay. In fact I took a trip to Florida to visit my Papa in between treatments.  However, by the end I felt like I’d been run over by a convoy of 18 wheelers.  But I made it through and this too passed and now all that was left of my treatment to endure was the radiation.

Freakin' Radiation

Everyone told me that the radiation would be easier than the chemo.  Having experienced both I completely disagree.  To me the radiation was so much scarier and uncomfortable, not to mention relentless.  I had 6 ½ weeks of radiation everyday Monday through Friday, and, to be quite honest, there were days that I just couldn’t take in and had to call and tell them I wasn’t coming.  I think it was mostly the relentlessness of it all.  Everyday I had to go to the lab and be subjected to something so terrible that everyone else had to be behind foot thick lead walls.  And, what the heck is that about?  If everyone else has to be protected from the radiation why the hell am I being subjected to it?

 

So, your first treatment takes the longest because they have to mark a kind of grid on you so that the machine is properly aligned and radiating the correct area.  At first they did this with medical tape and markers, but it itched and they’d come off.  If you don’t like the tape they will give you a sort of tattoo (and why they didn’t just do that to me to begin with is beyond me, I’m already covered in tattoos).  They just use a needle (a hypo, so its super sharp and you barely feel it); dip it in India ink and poke the needle into you skin to lay the ink.  Then they measure the area where the tumor was removed so that they can make a specialized template for later on.  Once all that is complete they line up the machine, everyone leaves the room and you’re all alone in this cold dark room.  You lay there with your breast exposed and this weird machine making noises that you know mean your being subjected to something lethal and thoughts of 3 Mile Island and Chernobyl come to mind.  The whole treatment takes about 20 minutes but it feels like an eternity and when you’re done you get up and go about your day.  After the first treatment you feel like you have a sunburn all over your breast and after treatment two the real burns begin.  The burns are worse where skin touches, like your under arm or the under side of your breast.  I have a rather large bosom and the area where skin touches skin is pretty big, I ended up with third degree burns under my breast and in my under arm area and burn pain is inescapable and the burns are a little gross.  

 

The first half or the treatment they radiate the entire breast and for the last they use the template they made and just radiate the area where the tumor was and the burns get really intense.  The radiation makes you very tired and the burns are very hard to deal with, but my hair started to grow back and I wasn’t so nauseas all the time anymore.  After what turned into 7 weeks due to rescheduling appointments it was done and now I could work on recovering from my treatments.

So, now that it’s all over…

What did I come away with?  Well, I have to say that as hard as the whole experience was I am a much better person for having gone through it.  I would venture to say that breast cancer is the best thing that ever happened to me.  I was a very bitter, pessimistic person and I was so completely unhappy with everything in my life including myself.  You know, it’s unfortunate that it took something so huge to change the way I saw things, but nothing less would have been able to do it.  Now the sun shines a little brighter and the air smells a little sweeter, and corny as that sounds it’s true.  I have a renewed faith in humanity, how could I not when so many people (even complete strangers) took time out of their lives to help me or pray for my well being.  It’s really hard to sweat the small stuff when you know that it actually could be worse.  Don’t get me wrong, life isn’t all sunshine and roses and I still have doubts and questions but my life is open now, open to all the doors bitterness and anger close.  I have happiness, faith and even love.  I honestly don’t think that I would have allowed myself to fall in love before, I certainly wasn’t open to receive it and now I have found the love of my life and am happier than I have ever been.  All this thanks to cancer.  I want to scream it from the mountain tops, “Don’t be so angry, it will all be okay.”  But I guess this is a lesson you have to learn for yourself.   

 

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